Kaheel Clark-Smith was diagnosed with the condition after being born with small blisters on his arms.
But now at three-weeks-old, the poor tot has lost 60% of his skin - and is so fragile, a small touch could peel his skin away.
And his distraught parents Kadyem, 22, and Kyera, 20, can’t even hold their little boy, who suffers from Epidermolyosis Bullosa (EB), for comfort.
EB is a rare genetic disorder that causes the skin to blister and burst, leaving raw sores that are susceptible to infections.
The family are fundraising money to have him flown to a specialist EB centre on the other side of the country.
Kahleel's aunt, Brandi Smith, said: "This is their first child and they are so overwhelmed and broken.
"We found out the day he was born and didn't know anything about it. We had to do all the research at home.
"We just got back the results from the biopsies and have been told it's the worst type of EB."
Little Kahleel took a turn for the worst last week and developed a staph infection that he's currently recovering from.